Target now has a line of adapted clothing which includes items for those with sensory issues as well as items with feeding tube openings and those with more room in the bottom for diapers. The line is Cat and Jack which has sizes up to XXL which means Junior can even wear them. Best of all the prices are very reasonable and comparable to their typical clothes prices. Cat and Jack adaptive clothing.
Way to go Target, I hope more variety will be added to the clothing line and we will definitely be ordering again.
We ordered a few items and Junior tried them today. After trying on the sweat pants I went back to the Target website today and sweat pants are no longer available. I really hope they are just sold out and will be back again soon.
With the extra room in the tush Junior could easily wear the size XXL youth and could likely also wear the XL youth without an issue. He also tried a XL youth size onesie which fit well and we could actually have gone down to a L.
The onesie has two layers, the layer that has the snaps and then a second layer that makes it look like the child is wearing a typical tshirt. The bottom layer has a g tube opening on each side so you can access the tube easily. We put it over Junior's back brace which worked really well and the sweat pants were big enough to go over his brace.
Junior trying on the sweat pants, these are over the top of his back brace and as you can see he still has plenty of room in them. Typically if pants fit him they are much too snug at the top to put over his brace and we have to put the brace over the top of them.
The onesie, we have the top layer pulled up to show the feeding tube opening.
Top layer pulled down so it looks like a typical tshirt.
Sitting up in his wheelchair. The onesie is keeping his back brace covered which will help keep him warmer in the winter. Typically when I put him in his wheelchair his shirt comes up on the sides and it is a struggled to keep it pulled down.
The top layer pulled up so I can connect his feeding tube. I had been concerned the feeding tube opening would be too small to make it really accessible but it worked perfectly.
Someone likes their new sweat pants and t-shirt.
I did wash the clothes before he tried them on and they still looked new after washing. Time will tell on how they hold up to repeated wash and wear.
We also ordered a sweatshirt which has a feeding tube opening but haven't tried it yet.
Sunday, October 22, 2017
Thursday, August 24, 2017
Swing/Lounge Chair
Junior received this great lounge/swing for his birthday and it has been a huge hit with him. Very comfortable and with a noodle pillow and small pillow behind his head it provides plenty of support. We could add a strap around him if needed but for Junior he is quite secure as it is. It is fairly large and heavy but great for on our porch and has an umbrella to keep the sun off. Here is the Amazon link for the lounge swing, but it can also be found on the Walmart website. Hanging lounge chair.
We hang his toy boards off the center bar and with the noodle pillow under his arms it works great with his inflatable sensory tray to do some fun, messy, activities.
We hang his toy boards off the center bar and with the noodle pillow under his arms it works great with his inflatable sensory tray to do some fun, messy, activities.
Sunday, April 23, 2017
Toy Boards
I posted about this on our FB page but since it has become one of Junior's absolute favorite things(possibly his very favorite) I decided to give it its own blog post as well.
Junior loves his toys but if he his holding a toy in his hands he cannot see it at the same time. Holding a toy gets boring quickly if you can't see what it is your playing with.
Over the years we have tried using toy bars(the baby type that you hang things on), and a giant pvc toy bar which he enjoyed but never was terribly crazy about. After a lot of brain storming I thought why not something similar to his sensory trays but that hangs where he can see it.
With his current Star Wars obsession we have lots of the characters and space ships in various sizes.
I used a thick piece of foam as the base then cut a piece of fleece and put it over the fleece to get the right size and figure out where to add velcro to secure it. I marked it so I knew where to come back and stitch on elastic loops(with velcro on the ends). Along the top edge I stitched a piece of fabric and secured one side. On the other side I put a strip of velcro. I then grabbed some spare pvc tubing and made a tube to hang the board on. I Slid a piece of one inch elastic through the PVC so I could hang the entire thing from Junior's Tripod.
The board hanging on the tripod, you can see how the elastic is inside the pvc(I added velcro along part of the length so the length can be adjusted as need )
Later I was able to find some road tape to add to the board so it looks like the cars are on a road.
Now Junior can hold toys in his hands and also see what he is playing with. He absolutely loves it and will spend an hour totally focused on the board, looking from one toy to the other as he talks and plays using his imagination. I will see his arms shake as he tries to move the toys in his hands. Oh how I wish I knew what story he was playing in his mind. He typically requests one of his boards the moment he wakes up and any time he is relaxing and watching tv he also wants a toy board.

You will notice that each toy has a black band around it. Those are hair elastics and make it so much easier to attach the toys to the elastic and velcro loops that are sewn to the boards.
This Star Wars toy board was the first one I made then I went back and made the car one after figuring out what did and didn't work and adjusting it.
Sometimes you just can't decide what to play with and need all the toys.
Junior loves his toys but if he his holding a toy in his hands he cannot see it at the same time. Holding a toy gets boring quickly if you can't see what it is your playing with.
Over the years we have tried using toy bars(the baby type that you hang things on), and a giant pvc toy bar which he enjoyed but never was terribly crazy about. After a lot of brain storming I thought why not something similar to his sensory trays but that hangs where he can see it.
With his current Star Wars obsession we have lots of the characters and space ships in various sizes.
I used a thick piece of foam as the base then cut a piece of fleece and put it over the fleece to get the right size and figure out where to add velcro to secure it. I marked it so I knew where to come back and stitch on elastic loops(with velcro on the ends). Along the top edge I stitched a piece of fabric and secured one side. On the other side I put a strip of velcro. I then grabbed some spare pvc tubing and made a tube to hang the board on. I Slid a piece of one inch elastic through the PVC so I could hang the entire thing from Junior's Tripod.
The board hanging on the tripod, you can see how the elastic is inside the pvc(I added velcro along part of the length so the length can be adjusted as need )
Later I was able to find some road tape to add to the board so it looks like the cars are on a road.
Now Junior can hold toys in his hands and also see what he is playing with. He absolutely loves it and will spend an hour totally focused on the board, looking from one toy to the other as he talks and plays using his imagination. I will see his arms shake as he tries to move the toys in his hands. Oh how I wish I knew what story he was playing in his mind. He typically requests one of his boards the moment he wakes up and any time he is relaxing and watching tv he also wants a toy board.
You will notice that each toy has a black band around it. Those are hair elastics and make it so much easier to attach the toys to the elastic and velcro loops that are sewn to the boards.
This Star Wars toy board was the first one I made then I went back and made the car one after figuring out what did and didn't work and adjusting it.
Sometimes you just can't decide what to play with and need all the toys.
The toys can be taken off the boards and others added but we keep a couple boards loaded at all time so he can choose which he wants. I plan to make a third so he has more to choose from and then swap out all the toys on them once in awhile.
After watching him play with these I think the reason he loves them and was not ever crazy about the regular toy bars is that these make it much easier for him to focus on the toys. With his other toy bars he could see everything else as he tried to look at his toy making it harder to focus on the object.
Here is a short video of him "playing" with his toys. May not be the typical way but in his mind he is playing with his toys just like every other kid.
Misc Adaptions
In case you aren't following along on FB here are a few of the things I have posted there.
Adaptions 4 Kidz fb page
First off we found these cool Cozy Phones head phones for Junior and he will actually wear them. He refuses to wear others but has done great with these. The head band is soft fleece and he can hear the sound even if they aren't completely over his ears.
Soaker Pillow covers. Junior has never struggled with drooling but since his trach he gets very wet around his neck, under the trach, especially during allergy season. When he is sleeping this ends up getting his pillow wet and he would wake up not happy in the morning because it would then get all over his shirt. After trying various things which helped a little but didn't fix the problem(having him sleep in one of his bandanas) I decided to make a cover for his pillow that would just soak it up and keep it off of him. I used a fun, patterned, cotton fabric for the top(so it looks like just a pillow case), added a middle flannel layer and then the bottom layer is terry cloth. Finally something that works, no more soaked pillows or soaked shirts in the morning which makes for a much happier kid.
Fun imoji Christmas lights looped over an ipad/switch arm and plugged into the power link make a great switch toy.
Plastic test tube holders are just right for putting oral medication syringes in after washing them.
We got these on amazon and the 30mm size hold the 20ml syringes and the 20mm size hold the 10 ml syringes.
We picked up these squishy balls for Junior's Easter basket this year and they were a big hit. Squishy, kind of sticky feeling, and a great sensory toy. Slime Balls
New cover for his Hi/Lo positing chair.
We have been using Junior's awesome Leckey Hi/Lo positing chair for several years and it is still one of his favorite spots to hang out. Several years ago we made a cover for it and now it was time to make a larger one. We discovered many years ago that though he loves this chair he did not like how the cushions and arm rests felt and would complain after being in the chair for just a few minutes. I tried putting a thick cover on it and now he loves the chair and will sit in it for a normal period of time and stay comfortable.
I used two layers of thick fleece, then hemmed a piece of cotton, patterned fabric and put on top of the fleece. We wanted the fleece for its padding/softness but it gets hot here and I knew the cover would be useless much of the year unless it had something else covering where Junior was actually sitting. Considering Junior's current Star Wars obsession we of course went with Star Wars fabric. After stitching the cotton fabric onto the fleece I laid the whole thing over his chair to figure out where the openings for his hip straps and laterals needed to be. I then cut the openings for them and put a zig stitch around the edges which I had just cut. Put the cover back over the chair and figured out where I need to add velcro to hold it snug to the chair so it didn't interfere with the motion or anything else. Around the legs and middle of the chair and actually attached a snapping clip to pull the fabric snug against the frame and out of the way.

Opening and stitching where the laterals come through the cover
Odd pic but it is actually showing the bottom of the chair with the clips to hold the fabric snug to the frame.
The back, you can't see it in the pic but there is velcro securing everything
Junior in his chair.
Junior's in the chair with his foam tray. We used very thick 5" foam and cut it in the shape of a tray then covered it in fabric. We have two of them, one with thinner areas where it goes around him under the elbows so the tray edges can actually squeeze between him and the chair edge and help support him and one with wider edges for when he is in his transport chair or recliner.
Feeding tube holder. Junior doesn't grab his feeding tube or pull on it but often will accidentally catch his hand on it and open the med port or disconnect the tube making a huge mess. I decided to try making him a little cover just to prevent this from happening. For those who have kids who actually grab the tube and open it this won't work but for our needs it is perfect.
I hemmed a piece of fabric to the length I wanted then added three straps. A thinner strap on each end and a thick one in the middle. The outside straps are around 1 inch wide and the middle one is 3-4 inches wide.
Junior has a gj tube so there are 2 connectors connected to his feeding tube at all times.
The straps on the end I lined with velcro so the tubes are secured

The middle strap just has velcro on the edge since and keeps the med ports and area where the tubes are connected covered.
I also made a similar cover for his exhaust port on his ventilator circuit but it has just a top and bottom strap. This keeps the moisture from the exhaust port off his shirt and sheets/chair but doesn't interfere with air flow.
With Junior we often have a few minutes here and there to do activities and if I don't have things already prepared and organized by the time I get something together it is time to move on to the next medical thing. We have 3 Ikea kitchen carts which we keep loaded with activities and things that are ready for him to do with no prep time. One cart is sensory and craft activities, one is toys, and the last is school activities. It makes such a difference to just grab a cart and be ready to do something(there is also a 4th cart that is all things switches so he can play with his switch toys)
Adaptions 4 Kidz fb page
First off we found these cool Cozy Phones head phones for Junior and he will actually wear them. He refuses to wear others but has done great with these. The head band is soft fleece and he can hear the sound even if they aren't completely over his ears.
Soaker Pillow covers. Junior has never struggled with drooling but since his trach he gets very wet around his neck, under the trach, especially during allergy season. When he is sleeping this ends up getting his pillow wet and he would wake up not happy in the morning because it would then get all over his shirt. After trying various things which helped a little but didn't fix the problem(having him sleep in one of his bandanas) I decided to make a cover for his pillow that would just soak it up and keep it off of him. I used a fun, patterned, cotton fabric for the top(so it looks like just a pillow case), added a middle flannel layer and then the bottom layer is terry cloth. Finally something that works, no more soaked pillows or soaked shirts in the morning which makes for a much happier kid.
Fun imoji Christmas lights looped over an ipad/switch arm and plugged into the power link make a great switch toy.
Plastic test tube holders are just right for putting oral medication syringes in after washing them.
We got these on amazon and the 30mm size hold the 20ml syringes and the 20mm size hold the 10 ml syringes.
We picked up these squishy balls for Junior's Easter basket this year and they were a big hit. Squishy, kind of sticky feeling, and a great sensory toy. Slime Balls
New cover for his Hi/Lo positing chair.
We have been using Junior's awesome Leckey Hi/Lo positing chair for several years and it is still one of his favorite spots to hang out. Several years ago we made a cover for it and now it was time to make a larger one. We discovered many years ago that though he loves this chair he did not like how the cushions and arm rests felt and would complain after being in the chair for just a few minutes. I tried putting a thick cover on it and now he loves the chair and will sit in it for a normal period of time and stay comfortable.
I used two layers of thick fleece, then hemmed a piece of cotton, patterned fabric and put on top of the fleece. We wanted the fleece for its padding/softness but it gets hot here and I knew the cover would be useless much of the year unless it had something else covering where Junior was actually sitting. Considering Junior's current Star Wars obsession we of course went with Star Wars fabric. After stitching the cotton fabric onto the fleece I laid the whole thing over his chair to figure out where the openings for his hip straps and laterals needed to be. I then cut the openings for them and put a zig stitch around the edges which I had just cut. Put the cover back over the chair and figured out where I need to add velcro to hold it snug to the chair so it didn't interfere with the motion or anything else. Around the legs and middle of the chair and actually attached a snapping clip to pull the fabric snug against the frame and out of the way.

Opening and stitching where the laterals come through the cover
Odd pic but it is actually showing the bottom of the chair with the clips to hold the fabric snug to the frame.
The back, you can't see it in the pic but there is velcro securing everything
Junior in his chair.
Junior's in the chair with his foam tray. We used very thick 5" foam and cut it in the shape of a tray then covered it in fabric. We have two of them, one with thinner areas where it goes around him under the elbows so the tray edges can actually squeeze between him and the chair edge and help support him and one with wider edges for when he is in his transport chair or recliner.
Using one of the foam trays with his transport chair
Boppy Pillows are great for positioning and support but have very baby looking covers on them. Junior refused to use the pillow if he spotted me grabbing it and would give me his "totally insulted" look if I suggested he use it.
Some Star Wars fabric took care of the problem. I used the cover that had come with the boppy as a pattern then added velcro to the end to hold it on the boppy since I didn't have a zipper like the original has.
I hemmed a piece of fabric to the length I wanted then added three straps. A thinner strap on each end and a thick one in the middle. The outside straps are around 1 inch wide and the middle one is 3-4 inches wide.
Junior has a gj tube so there are 2 connectors connected to his feeding tube at all times.
The straps on the end I lined with velcro so the tubes are secured

I also made a similar cover for his exhaust port on his ventilator circuit but it has just a top and bottom strap. This keeps the moisture from the exhaust port off his shirt and sheets/chair but doesn't interfere with air flow.
With Junior we often have a few minutes here and there to do activities and if I don't have things already prepared and organized by the time I get something together it is time to move on to the next medical thing. We have 3 Ikea kitchen carts which we keep loaded with activities and things that are ready for him to do with no prep time. One cart is sensory and craft activities, one is toys, and the last is school activities. It makes such a difference to just grab a cart and be ready to do something(there is also a 4th cart that is all things switches so he can play with his switch toys)
Saturday, January 28, 2017
Junior's Bandana Bibs
There are many people that make bandana bibs and I have seen lots of very cute and functional ones. Prior to Junior's trach something like this was not needed so I had never tried making them or using them with Junior.
Now that Junior is trached we deal with a lot of wetness around the trach and have struggled to find a way to keep his shirt dry and make sure his skin doesn't get irritated. I looked at various patterns, ordered from a few people on etsy, and kept looking to find that one that would work just right for Junior. Finally when nothing worked we tried making our own, combining things we liked from several others. The biggest change was adding a notch to the bandana where the trach sits. Otherwise when the bandana wraps around to fasten it ends up folding a bit and going over the trach. I also shortened up the ends that go around the neck and added an extra soaker layer.

Now that Junior is trached we deal with a lot of wetness around the trach and have struggled to find a way to keep his shirt dry and make sure his skin doesn't get irritated. I looked at various patterns, ordered from a few people on etsy, and kept looking to find that one that would work just right for Junior. Finally when nothing worked we tried making our own, combining things we liked from several others. The biggest change was adding a notch to the bandana where the trach sits. Otherwise when the bandana wraps around to fasten it ends up folding a bit and going over the trach. I also shortened up the ends that go around the neck and added an extra soaker layer.

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